Northwest Tribal Registry Project
Mission:
The Registry Project works with state health bodies to correct racial misclassification, thereby increasing the quality of disease surveillance data for American Indians and Alaska Natives (AI/AN) in Idaho, Oregon and Washington.
Goals:
- Ascertain amount of racial misclassification in disease registries.
- Obtain accurate estimates of disease burden for Northwest AI/AN.
- Use linked case information to generate health status information for tribes and health programs.
- Repeat linkages at regular intervals to build health trend data over time.
- Correct misclassification in state cancer registries
Strategies:
- The Registry Project utilizes probabilistic linkage software to match Northwest Indian Health Service Resource and Patient Management System (RPMS) records to state health records and verify correct racial classification in state data.
- The Registry Project provides technical data assistance including cancer and other health statistics to tribal health professionals and community health advocates.
- The Registry Project works with the Northwest Tribal Cancer Control Project to disseminate cancer data and identify tribal cancer data needs.
Tribes Served:
The Registry serves the 43 federally recognized tribes in Idaho, Oregon, and Washington.
Funding:
Project activities are funded by the National Cancer Institute, Grant # HHSN261201000335P, current funding 6/1/2010 — 5/31/2011; and the Northwest Tribal EpiCenter grant (Indian Health Services), U1B9400001/10, current funding 09/16/2006 - 09/15/2011.
Related Project
The Improving Data & Enhancing Access (IDEA-NW) Project is a newly-funded 3-year grant that expands upon the work of the Northwest Tribal Registry Project. New data sources that will be covered by this project include hospitalizations, vital records (births & deaths), trauma, and STD/HIV data.
